Get involved with eczema research

Eczema Outreach Support works with researchers across the UK and beyond.

We take part in steering groups and panels, work with university researchers and with companies developing new eczema treatments.

We also work with the National Institute of Health and Care Excellence (NICE) and the Scottish Medicines Consortium (SMC) in the assessment of new treatments. We do all of this to make sure that the experiences and needs of children with eczema and their families are represented.

There are lots of opportunities for families with eczema to get involved with research too.

Kids in Control study

Does your child have eczema?

Help find new ways to manage scratching in children with eczema.

‘Kids in Control aims to help children take control of their eczema by increasing their understanding of the condition, awareness of scratching behaviour and supporting a change in behaviour to help reduce itchy skin.’ (Kids in Control, 2024)

Find out more here.

RAPID Eczema Trials

Join a team of members of the public and researchers to design and run clinical trials that answer questions that people have about living with eczema.

Have you ever wondered how long you should use steroid creams for when you have a flare-up? Find out more about how you can join the Keep Control of Eczema Study here.

If you have eczema or your child does, then find out more at rapideczematrials.org.

Look out for more opportunities coming soon.

Mind and Skin

Mind & Skin is a study evaluating the impact of skin inflammation, itch and sleep disturbance on the brain, in patients with or without eczema (including healthy volunteers), aged 12-18 years old, through a range of assessments such as:

Sleep studies in the home environment
Lifestyle questionnaires
Skin tape sampling and swabs (non-invasive)
MRI scan
Single blood test

They are looking for young people who fall into any of the following categories:

Group 1: Atopic Dermatitis patients who are about to start systematic treatments (such as Methotrexate or Dupilumab)

Group 2: Atopic Dermatitis patients who manage with topical treatments

Group 3: Healthy volunteers with no history of atopic dermatitis

All participants who take part will receive a £50 voucher per visit to the hospital, to say thank you to them volunteering their own time. The research team will also cover meal and travel expenses.

Find out more here.

Surface Echos

Surface Echoes is a resource that was developed over three years with input from creative professionals, arts and health researchers, working in partnership with individuals affected by eczema. It brings to life the everyday challenges and emotional impact of eczema and has resulted in resources that aim to create empathy, spark conversation, and deepen understanding of the realities of living with eczema.

The resources include:

A4 Printable PDF script – Download here

This can be used :

by anyone wishing to learn more about what it’s like to live with eczema

as a training resource for healthcare professionals

as a printable resource to share with other people when it’s difficult to explain about eczema

The PDF is an A4 printable script to be read together in a group, with a friend, or alone, but we think it is most powerful when read out loud together in a group of 3-10 people, as a collective experience of reading and listening to other people’s voices.