We are thrilled the to launch our new report: ‘Time for Change in the UK: The true impact of eczema and the experiences of children, young people and their families in managing the condition’. This report has been written and funded by Sanofi Genzyme in collaboration with Eczema Outreach Support (EOS), who work to support families to improve eczema services across the UK.
The report found that while the current level of care afforded to children and young people is of a good standard, there are areas where significant improvements need to be made. The report also highlighted that managing the associated symptoms of eczema can have a big impact on an individual’s physical and mental health, self-confidence, education, and social life.
Last year, we surveyed children and young people (11-17) with eczema and parents/carers of children aged 0-17 with eczema. The purpose of the survey was to find out the true impact the condition has on their lives and how they are supported in managing it. We are so grateful to all of our members and everyone else who completed the survey. There was a great response to the survey, with just under 4,000 responses.
The report looks at the general impact of eczema; the healthcare experience; provision of support services; impact on education; and current national guidance on eczema. It makes recommendations to ensure that better care and support is provided for children and young people with eczema.
One of the key findings was that support for mental wellbeing can make a significant difference to people with eczema, with 88% of young people who had accessed this support found it helpful. Demand is strong, with 39% of young people reporting they would benefit from mental health support. However, many parents/carers found it either impossible (27%) or difficult (19%) to access mental health support for their child.
Would you like to know more? You can read the full report here.